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Shiloh Pepin
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    (August 4, 1999-October 23, 2009)
    Born in Kennebunkport, Maine
    Girl born with sirenomelia, otherwise known as mermaid syndrome
    Very rare congenital deformity where the legs are fused together
    Seen on TLC documentaries and an appearance on 'The Oprah Winfrey Show' (September 22, 2009)
    Died of pneumonia at the Barbara Bush Children’s Hospital at Maine Medical Center at age 10
    Her unoriginal nickname (one SHE didn't come up with) was 'mermaid girl.'
    Even if surgery was possible, she didn't want her legs separated because she was too frightened of the procedure.
    The steroids she took to ward off infections caused her face and body to become puffy and bloated.
    She announced on Oprah's show that her parents were divorcing.
    She died just one month after appearing on Oprah's show.
    Doctors told her parents after her birth she had around 72 hours to live (and they were very wrong).
    Besides her fused legs, she was born with just a portion of one kidney, one ovary, and no rectum, bladder or vagina.
    She was only the third person born with sirenomelia to survive infancy.
    Despite all this, she had a zest for life, fought through her various illnesses bravely and didn't mind being called 'mermaid girl.'
    She had to endure two separate kidney transplants.
    She had her own website and Facebook Page.
    She was too weak to fight off pneumonia, which led to septic, and died surrounded by her family.
    Her story touched millions of TV viewers and her mom wants people to remember not that she died, but rather, how she lived.

Credit: Scar Tactics

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